Home Market A cuddle could tear my son's skin due to rare disorder

A cuddle could tear my son's skin due to rare disorder

by Henry
0 comments

A couple whose son has a rare genetic skin condition say it is hard to process that a cuddle could "tear his skin".

Twenty month old Albi was born with a severe form of recessive dystrophic epidermolysis bullosa (RDEB), a disorder which causes his skin to break out in blisters or tear with the slightest friction.

It also affects his internal skin, causing his mouth and oesophagus to blister and making eating and swallowing painful. He is fed through a tube into his stomach as a result.

Albi's parents Erin Ward, 23, and Calum Blackman, 26, from Tondu in Bridgend, are hoping a cure can be found for their son, who lives in pain every day.

banner

You may also like

Leave a Comment